All of this nostalgia started at Alys cardiologist checkup on Thursday. We were in the waiting room at Dr. Z's office and I decided to read Aly this book:
As I started reading it, I got really choked up. I remembered the first time I met Dr. Z when I was 8 months pregnant. I had gotten my diagnosis, been to U of M for confirmation and to find out the next steps. We were meeting Dr. Z so that he would see us before Aly was born and have an opportunity to do an Echo on Miss Aly while I was still pregnant and see what we were starting with since he wouldn't see her again until after we came home from the first surgery. While I was in the waiting room, I was nervously flipping through the magazines and books on the tables. I came across this one and read it. I thought it was a great book and I told Jeremy that I wanted one. So I wrote down where I could get one because I daydreamed of one day, reading this to my baby after we got through some of this. So when I was reading this to Aly the other day, I realized we had made it. We have come full circle back to fufill a dream of mine for her. I know we are still a "work in progress", but you know what? Who isn't? Some have bigger challenges like Aly and some are lucky enough to have smaller challenges in life but we all have them. We are doing the absolute best we can with our challenges and our Aly still amazes us on a daily basis. Here she is waiting to see Dr. Zriek after we read our book in the waiting room:
She is sitting in the "big girl chair" for the first time and watching the fish. Seriously, how much cuter can she possibly get? :)
As for her check up with Dr. Z, in his words,"Aly gets a good grade from me today." Her EKG looked great, she sounded great, her blood pressure was good. Her sats were 94, which I'm a little uncomfortable with, but he didn't seem to concerned. When we were at U of M for her Hemi-Fontan, I was talking to one of the PCTU nurses about sats and she said that too high was not really something they liked to see as well as too low. But, if Dr. Z isn't concerned then neither am I. (But that doesn't mean that I haven't been trying to find a way to get my hands on my own pulse oximeter that I can have at home. Any suggestions? )
One of the best parts of the visit was her weight. I think I can say with confidence that our weight gain issues are over!!! WWWHHHEEWW!! Aly gained 22 ounces in 3 and a half weeks!! Which is a phenomenal weight gain for her! We couldn't ask for anything more. This has been one of our biggest issues (which I am extremely thankful for- many others deal with much larger issues) and it is such a breath of fresh air to not have to worry about every ounce.
She is doing so well. We are so blessed for little Aly. My heart goes out to heart families who have lost their children. Just in the last couple of weeks three other heart children whose stories I have been following have become angels (Rachel, Ava and Josiah). Everytime this happens, my heart just breaks for these families. I know I can't do anything to take away their pain, but I know that I can appreciate my daughter and how well she is doing and never ONCE take for granted any one second of her life. I know that no matter what, those parents would give anything to hold their children for just five more minutes. I'm sure no matter how long you have with them, you could never say it was enough. So, in honor of these babies (and the many, many others) of their families, give your kids an extra hug, an extra kiss, be sure to tell them you love them or hold them a few minutes longer today, for those who can't.
I'm off to take Miss Aly to the mall! We are headed for treadmill shopping!! Now that we have her GAINING weight, it's time for mom to focus on LOSING some.... :)